Zebra artwork courtesy of FourthAvenueDesign 

World Rare Disease Day

Join us for our second World Rare Disease Day Rally on Feb 22, 2020 from 9:30-11:30 at Trinity Presbyterian Church in Charlotte, NC. We have crafts, a donut food truck, music, vendors and more! Register here for the event and we look forward to seeing you!

What is Rare Disease?

Visit our rare disease page to find out more information on rare and undiagnosed conditions and how we are working to get the word out in our community.

Story Spotlight

Check out our blog to read about our community and their undiagnosed and rare disease journeys as well as relevant topics.

“When I think of rare, I think of strong, brave, resilient and more courageous than I could ever be”

-S.M., mother of child with rare condition


The Rare and Undiagnosed Network (RUN) of Charlotte, is a patient and family oriented organization for caregivers and individuals with rare and undiagnosed conditions in the Carolinas. RUN Charlotte is dedicated to providing resources and social support, community education and advocacy and programming for caregivers and individuals.

About Us

We are a group of moms of children with rare and undiagnosed conditions in the greater Charlotte, NC area. This group was started to provide support and empowerment to families with children with undiagnosed and rare conditions.

On Facebook?

For updates regarding the annual World Rare Disease Day in Charlotte, follow our public Facebook page.


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